Development of System Performance Indicators for Adolescent and Young Adult Cancer Care and Control in Canada

Objectives: To develop an expert-group, consensus-based list of system performance indicators to be used for monitoring, evaluating, and benchmarking progress for cancer care and control in adolescents and young adults…

Understanding the Symptoms and Concerns of Adolescents and Young Adults with Cancer in Alberta: A Comparative Cohort Study Using Patient-Reported Outcomes

Purpose: Adolescents and young adults (AYAs) with cancer are in a unique situation due to their age and developmental stage in life and may have different symptoms and concerns than older…

Evolution of adolescent and young adult oncology in Canada

In 2008, the Canadian Task Force on Adolescents and Young Adults with Cancer (tf) was formed with funding from the Canadian Partnership Against Cancer, together with the support of C17,…

Commentary

The articles in this supplement represent presentations and discussions at the “International Workshop on Adolescents and Young Adults with Cancer: Towards Better Outcomes in Canada” that was held in Toronto,…

A Process for Change in the Care of Adolescents and Young Adults with Cancer in Canada. “Moving to Action”: The Second Canadian International Workshop. International Perspectives on AYAO, Part 1

The Canadian National Adolescent and Young Adult Cancer Task Force (NTF) held its second international workshop in Toronto during March 2012. The workshop’s theme, “Moving to Action,” focused on implementing…

Active therapy and models of care for adolescents and young adults with cancer

The reduction in the cancer mortality rate in adolescents and young adults (AYA) with cancer has lagged behind the reduction noted in children and older adults. Studies investigating reasons for…

Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult–Aged Cancer Patients and Survivors

Adolescents and young adults (AYA) with cancer and survivors of cancer in childhood, adolescence, and young adulthood are a constituency facing disparities of care affecting quality of life and other…

Projected estimates of cancer in Canada in 2024

Background: Cancer surveillance data are essential to help understand where gaps exist and progress is being made in cancer control. We sought to summarize the expected impact of cancer in Canada…

Income After Cancer Across Gender and Age Among Canadian Adolescents and Young Adults

Background: Cancer in adolescents and young adults (AYAs) emerges during critical transitional phases, resulting in lasting effects on financial well-being. It remains uncertain whether cancer in AYAs exhibits differences in…

Income and employment outcomes in early adulthood among survivors of childhood cancer: a population-based longitudinal matched cohort study in Canada

Purpose: To examine labor force participation and employment income during early adulthood among childhood cancer survivors and matched cancer-free individuals in Canada. Methods: Children aged 0–14 diagnosed with cancer from…

Podcasting and Blogging as Tools to Engage with the Public on the Topic of Cancer: Experience and Perspectives of the Public Interest Group on Cancer Research

We (Public Interest Group on Cancer Research) started a podcast and guest blog series on cancer in 2024. Our objective in this Commentary is to describe our experience with this…

Job-protected medical leave lets workers return to work after serious illness

Workers with a serious illness or injury will have improved job protection under a proposed amendment to the Employment Standards Act. Following the changes, working people will be able to…

Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Background: Patient engagement in research is the meaningful and active involvement of patient and caregiver partners (ie, patients and their family or friends) in research priority-setting, conduct, and governance. With…

The human crisis in cancer: a Lancet Oncology Commission

Amid unprecedented scientific progress in oncology, a growing body of evidence reveals a parallel and profound crisis in the human experience of cancer care. Despite overall survival outcomes improving, the…

BioCanRx Summit for Cancer Immunotherapy 2022 Proceedings

From 19 to 21 November 2022, BioCanRx held its first post-pandemic in-person Summit for Cancer Immunotherapy in Montreal, Canada. The meeting was well attended by patients, trainees, researchers, clinicians, and…

“We can do better”: preferred practices and areas for improvement while working with patient advisors in professional organization committees

Background: As the best practices for working with patient advisors in organizational committees are still under development, we sought to identify our own experience as the Canadian Association of Psychosocial…

Establishing the Top 10 Research Priorities for Adolescent and Young Adult (AYA) Cancer in Canada: A Protocol for a James Lind Alliance Priority Setting Partnership

Adolescents and young adults (AYAs; 15–39 years) diagnosed with cancer have unique medical and psychosocial needs. These needs could be better addressed through research that is focused on the topics…

Constructing TheKeep.Ca With Thrivers of Cancer in Manitoba, Canada, in Support of Enhancing Patient Engagement: Protocol for a Pragmatic Multimethods Study

TheKeep.Ca was built to facilitate engagement with those experiencing cancer in Manitoba, Canada. Constructed between 2020 and 2024 with a group of patient advisors, the website includes information on engagement…

Developing an Adolescent and Young Adult Oncology Program in a Medium-Sized Canadian Centre: Lessons Learned

The Adolescent and Young Adult (AYA) Program at CancerCare Manitoba (CCMB) has experienced tremendous growth since its inception. This report provides an overview of how the AYA program at CCMB…

The Development and Impact of AYA Can—Canadian Cancer Advocacy: A Peer-Led Advocacy Organization for Adolescent and Young Adult Cancer in Canada

Adolescents and young adults (AYAs; 15–39 years) diagnosed with cancer face disparities in outcomes and survival. Patient advocacy organizations can play a pivotal role in advancing outcomes for underserved health…