The Journal of Medical Imaging and Radiation Sciences (JMIRS) began publishing health narratives in 2020, authored by patients and HCPs who described their experiences with radiation therapy and medical imaging. The…
Background: Individuals with advanced cancer face the challenge of remaining engaged in life, while also contemplating death. However, there has been no validated measure of the adaptive capacity to balance…
Question: What are the characteristics and context of adolescent and young adult patients with cancer who use medical assistance in dying (MAID)? Findings: In this retrospective cohort study including 34…
Background: The Fear of Cancer Recurrence Inventory-Short Form (FCRI-SF) is commonly used to categorize the severity of fear of cancer recurrence (FCR) defined as fear, worry, or concern about cancer…
Objectives: Cancer in adolescents and young adults (AYAs; ages 15–39 years) is a rising global epidemic. Yet, AYAs remain an understudied population, and little is known about what research topics should…
Researchers at the University of Calgary have developed 10 priorities for working with young people facing cancer. The top priority, determined after a consulting with hundreds of people with adolescent and young adult…
New cancer drugs are very expensive. Most Canadians could never afford them without public coverage, even if they sold their homes and borrowed money from everyone they knew. Canada does…
Background: Adolescent and young adult (AYA; 13 to 39 years) survivors of childhood cancer may be especially vulnerable to physical health and mental health concerns during the pandemic. We investigated…
Background: Online support groups (OSGs) are often a convenient way for many patients with cancer and cancer survivors to obtain information and support. However, not all OSGs are helpful, and…
In September 2019, the International Psycho-oncology Society (IPOS) annual conference was held in Banff, Alberta with 4 days of talks, workshops, and presentations attracting >600 attendees from 50 different countries….
Patients with common cancers are generally more likely to die from causes other than their cancer, according to research published in JNCI Cancer Spectrum. The study suggested that, for most…
Cancer survivors have been increasingly advocating for research into the long-term effects of their treatments. Some researchers working on cancer survivorship issues engage survivors productively with their teams, but many…
The obvious outcome from this study would seem to be to recommend breast cancer screening for female childhood cancer survivors, but the researchers emphasized that more discussion may be required…
As every cancer survivor and caregiver knows, the end of treatment does not mark the end of the need for support from the care team. We believe that it would…
Introduction: Considerable observational evidence suggests that cancer online support groups reduce feelings of isolation, depression and anxiety, enhance coping and self-management, and lead to better informed patients. Other studies indicate that…
Importance: Patient-centered research is essential for bridging the gap between research and patient care, yet patient perspectives are often inadequately represented in health research. Objective: To leverage artificial intelligence (AI) and natural…
Adolescents and young adults aged 15–39 years diagnosed with cancer are faced with unique challenges, which affect key developmental milestones and can create complex care needs. The aim of this…
As the 8 patient partners serving on the PCORnet® Steering Committee, we stand at the forefront of a transformative movement in clinical research. PCORnet® Network Partners have been pioneers in integrating patient…
Learn more about academic cancer clinical trials and access resources to support and evolve your work as Patient Partners.
The Canadian Framework for the Care and Support of Adolescents and Young Adults with Cancer (the Framework) describes a national vision for the care and support of AYAs with this…
