Article/Paper

Income After Cancer Across Gender and Age Among Canadian Adolescents and Young Adults

Background: Cancer in adolescents and young adults (AYAs) emerges during critical transitional phases, resulting in lasting effects on financial well-being. It remains uncertain whether cancer in AYAs exhibits differences in financial impact on income based on gender and diagnosis age over time. Methods: We linked Canada’s national cancer registry to personal tax records to identify […]

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Income and employment outcomes in early adulthood among survivors of childhood cancer: a population-based longitudinal matched cohort study in Canada

Purpose: To examine labor force participation and employment income during early adulthood among childhood cancer survivors and matched cancer-free individuals in Canada. Methods: Children aged 0–14 diagnosed with cancer from 2000 to 2017 in Canada were identified from the Canadian Cancer Registry and matched to cancer-free individuals by birth year, sex, and region of Canada

Income and employment outcomes in early adulthood among survivors of childhood cancer: a population-based longitudinal matched cohort study in Canada Read More »

Podcasting and Blogging as Tools to Engage with the Public on the Topic of Cancer: Experience and Perspectives of the Public Interest Group on Cancer Research

We (Public Interest Group on Cancer Research) started a podcast and guest blog series on cancer in 2024. Our objective in this Commentary is to describe our experience with this series, insights gained, adjustments made to our approach, and our recommendations for future series. Our group identified and invited guests to contribute a blog or

Podcasting and Blogging as Tools to Engage with the Public on the Topic of Cancer: Experience and Perspectives of the Public Interest Group on Cancer Research Read More »

Job-protected medical leave lets workers return to work after serious illness

Workers with a serious illness or injury will have improved job protection under a proposed amendment to the Employment Standards Act. Following the changes, working people will be able to take as many as 27 weeks of unpaid, job-protected leave within a 12-month period to undergo medical treatment and recovery. The amendment will bring British

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Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study

Background: Patient engagement in research is the meaningful and active involvement of patient and caregiver partners (ie, patients and their family or friends) in research priority-setting, conduct, and governance. With the proper support, patient and caregiver partners can inform every stage of the research cycle, but common barriers often prevent their full engagement. Objective: This

Exploring Patient and Caregiver Perceptions of the Facilitators and Barriers to Patient Engagement in Research: Participatory Qualitative Study Read More »

The human crisis in cancer: a Lancet Oncology Commission

Amid unprecedented scientific progress in oncology, a growing body of evidence reveals a parallel and profound crisis in the human experience of cancer care. Despite overall survival outcomes improving, the systems designed to deliver care increasingly fall short in addressing the emotional, relational, and existential dimensions of cancer. Although examples of compassionate and attentive care

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BioCanRx Summit for Cancer Immunotherapy 2022 Proceedings

From 19 to 21 November 2022, BioCanRx held its first post-pandemic in-person Summit for Cancer Immunotherapy in Montreal, Canada. The meeting was well attended by patients, trainees, researchers, clinicians, and industry professionals, who came together to discuss the current state and future of biotherapeutics for cancer in Canada and beyond. Three plenaries, three keynote speakers,

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“We can do better”: preferred practices and areas for improvement while working with patient advisors in professional organization committees

Background: As the best practices for working with patient advisors in organizational committees are still under development, we sought to identify our own experience as the Canadian Association of Psychosocial Oncology—Advocacy Committee. Methods: Committee communications including meeting minutes, email correspondences, and transcript of a webinar delivered by the authors were reviewed to identify the key

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Establishing the Top 10 Research Priorities for Adolescent and Young Adult (AYA) Cancer in Canada: A Protocol for a James Lind Alliance Priority Setting Partnership

Adolescents and young adults (AYAs; 15–39 years) diagnosed with cancer have unique medical and psychosocial needs. These needs could be better addressed through research that is focused on the topics that matter most to them. However, there is currently no patient-oriented research agenda for AYA cancer in Canada. This manuscript describes the early development and

Establishing the Top 10 Research Priorities for Adolescent and Young Adult (AYA) Cancer in Canada: A Protocol for a James Lind Alliance Priority Setting Partnership Read More »

Constructing TheKeep.Ca With Thrivers of Cancer in Manitoba, Canada, in Support of Enhancing Patient Engagement: Protocol for a Pragmatic Multimethods Study

TheKeep.Ca was built to facilitate engagement with those experiencing cancer in Manitoba, Canada. Constructed between 2020 and 2024 with a group of patient advisors, the website includes information on engagement activities including research participation, the patient advisor role, and how those experiencing cancer can access these Manitoba activities. A link allows visitors to register to

Constructing TheKeep.Ca With Thrivers of Cancer in Manitoba, Canada, in Support of Enhancing Patient Engagement: Protocol for a Pragmatic Multimethods Study Read More »

Developing an Adolescent and Young Adult Oncology Program in a Medium-Sized Canadian Centre: Lessons Learned

The Adolescent and Young Adult (AYA) Program at CancerCare Manitoba (CCMB) has experienced tremendous growth since its inception. This report provides an overview of how the AYA program at CCMB was established and the crucial factors that led to its early accomplishments and continued expansion. These factors included actions and decisions made at the individual

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The Development and Impact of AYA Can—Canadian Cancer Advocacy: A Peer-Led Advocacy Organization for Adolescent and Young Adult Cancer in Canada

Adolescents and young adults (AYAs; 15–39 years) diagnosed with cancer face disparities in outcomes and survival. Patient advocacy organizations can play a pivotal role in advancing outcomes for underserved health conditions, such as AYA cancer. In 2018 a group of AYA patient advocates founded AYA Canada (later renamed to “AYA Can—Canadian Cancer Advocacy”), a peer-led

The Development and Impact of AYA Can—Canadian Cancer Advocacy: A Peer-Led Advocacy Organization for Adolescent and Young Adult Cancer in Canada Read More »

Prevalence, severity, and predictors of symptom burden among adolescents and young adults with cancer

Symptom burden in adolescents and young adults (AYA) with cancer is poorly characterized but impacts quality of life. AYA with cancer experience substantial symptom burden. Risk of death increased with symptom severity. Interventions targeting cancer fatigue and anxiety, and targeting AYA in lower-income neighborhoods, are likely to improve quality of life in this population.

Prevalence, severity, and predictors of symptom burden among adolescents and young adults with cancer Read More »

The Effect of Specialized Palliative Care on End-of-Life Care Intensity in AYAs with Cancer

Many AYAs with cancer continue to receive HI-EOL care; however, in this cohort, there was a clear benefit to Specialized Palliative Care (SPC) involvement in reducing care intensity. AYAs least likely to receive SPC included those with hematologic malignancies, males, and rural AYAs. Increasing SPC access has the potential to improve EOL care.

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Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey

Adolescents and young adults (AYA) with cancer desire peer support and require support programs that address their unique needs. This study investigated the need for, and barriers to, peer support and preferences for digital peer navigation among AYA.

Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey Read More »

The delivery of palliative and end-of-life care to adolescents and young adults living with cancer: a scoping review protocol

This review will provide an overview of the evidence on the delivery of palliative and end-of-life care to adolescents and young adults living with cancer, by identifying knowledge gaps and discussing the key characteristics and types of evidence in this field.

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