Article/Paper

Advocate Angus Pratt explores the pros and cons of patient access to electronic health records and discusses how the emergence of artificial intelligence—with human oversight—could offer a way to navigate this complex issue.

Background: A successful transition from child-centred to adult-oriented healthcare for survivors of childhood and adolescent cancer is essential to help them engage in lifelong surveillance in survivorship care. Information on their needs and preferences for the transition process is needed to identify key components for a successful transition. Objective: To describe the transition needs and

The world is facing an epidemic of cancer in people under 50. Our health-care system is trying to catch up. The need to better understand cancer in AYAs is more critical than ever, and health-care systems—including ours—have to evolve accordingly.

A Nova Scotia woman with a rare form of cancer is hoping her terminal diagnosis can make change. She says if wait times for the gynecological care she needed weren’t so long, her situation may be different.

Background: Adolescents and young adults (AYAs) with cancer often experience high-intensity end-of-life care and low utilization of palliative care. To explore this further, we evaluated the frequency of palliative care involvement and its association with end-of-life care intensity among AYAs with cancer in Ontario, Canada. Methods: We conducted a retrospective cohort study using health administrative databases in

Adolescents and young Ontarians with cancer are more likely to receive intense end-of-life care than their older peers, even in situations where it is unlikely to help, a new study suggests — a trend that may be prolonging the suffering of some young patients, according to the paper’s lead author.

Adolescents and young adults (AYA) with cancer and survivors of cancer in childhood, adolescence, and young adulthood are a constituency facing disparities of care affecting quality of life and other outcomes in many parts of the world. In Canada, this situation occurs in a nation with population-based cancer control programs and a government-funded healthcare system.

The Adolescent and Young Adult (AYA) Program at CancerCare Manitoba (CCMB) has experienced tremendous growth since its inception. This report provides an overview of how the AYA program at CCMB was established and the crucial factors that led to its early accomplishments and continued expansion. These factors included actions and decisions made at the individual

Primary care providers may not see adolescent and young adult (AYA) cancer survivors often, but when they do, these two just-in-time tools have been developed to help providers connect their AYA patients to further resources and support.

Shining a light on adolescents and young adults. In 2023, an estimated 9,000 people in Canada aged 15 to 39 were diagnosed with cancer.1 As survival rates continue to climb, more and more adolescents and young adults (AYAs) will live several decades beyond diagnosis and treatment. That’s good news. But as AYAs with cancer get older,

Recent publications highlight unique needs of young oncology patients and survivors. Every year 2,000 Canadians aged 15 to 29 are diagnosed with cancer.1 In response to the unique needs of these young Canadians, the Canadian Task Force on Adolescents and Young Adults with Cancer (AYA Task Force) is pioneering work to investigate and increase awareness

Recognition of the distinctive challenges in providing care to adolescents and young adults (AYA) with cancer has grown over the past 30 years in numerous countries, stimulated in particular by groups of advocates who have in turn raised awareness and philanthropic funding while harnessing support from the cancer care community and agencies of federal governments.

Objectives: To develop an expert-group, consensus-based list of system performance indicators to be used for monitoring, evaluating, and benchmarking progress for cancer care and control in adolescents and young adults (AYAs) in Canada. Methods: A national multidisciplinary panel of AYA oncology experts was convened; they prepared a literature review and undertook a brainstorming exercise to

Purpose: Adolescents and young adults (AYAs) with cancer are in a unique situation due to their age and developmental stage in life and may have different symptoms and concerns than older patients. Patient-Reported Outcomes (PROs) questionnaires, routinely used in Alberta, can help identify the distinct needs of AYAs. We aimed to compare PROs data for AYAs

In 2008, the Canadian Task Force on Adolescents and Young Adults with Cancer (tf) was formed with funding from the Canadian Partnership Against Cancer, together with the support of C17, the consortium of Canadian pediatric cancer centres. The goal of developing an aya-specific cancer control strategy was to improve all outcomes in the aya cancer population. The tf was headquartered

The articles in this supplement represent presentations and discussions at the “International Workshop on Adolescents and Young Adults with Cancer: Towards Better Outcomes in Canada” that was held in Toronto, Ontario, March 11-13, 2010. The opinions or views expressed in this supplement are those of the authors of individual presentations. The summaries of discussions are

The Canadian National Adolescent and Young Adult Cancer Task Force (NTF) held its second international workshop in Toronto during March 2012. The workshop’s theme, “Moving to Action,” focused on implementing the NTF’s recommendations, published previously in the Journal of Adolescent and Young Adult Oncology. Here we provide a review of the NTF’s process of engagement and

The reduction in the cancer mortality rate in adolescents and young adults (AYA) with cancer has lagged behind the reduction noted in children and older adults. Studies investigating reasons for this are limited but causes appear to be multifactorial. Host factors such as developmental stage, compliance, and tolerance to therapy; provider factors such as lack

Adolescents and young adults (AYA) with cancer and survivors of cancer in childhood, adolescence, and young adulthood are a constituency facing disparities of care affecting quality of life and other outcomes in many parts of the world. In Canada, this situation occurs in a nation with population-based cancer control programs and a government-funded healthcare system.