Article/Paper

Hereditary cancer, high cholesterol risk for 100,000 Canadians to be checked in genetic screening project

Over the next five years, up to 100,000 people in Ontario will be screened for genetic conditions that increase their risk of hereditary cancers and a condition tied to high cholesterol and heart disease, says Princess Margaret Cancer Centre. In what the hospital calls one of the largest population genomics studies in Canada, the project

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Developing and Testing Electronic Versions of the Advance QoL Tools for Collecting Self-Reports of Quality of Life in Children and Adolescents With Advanced Cancer

Introduction: To provide appropriate interventions for young people with advanced cancer, self-reported questionnaires assessing quality of life (QoL) are crucial. This study aims to develop and test electronic versions of two short self-reported questionnaires (for children aged 8–12 and adolescents aged 13–18). Methods: We adapted the paper-and-pencil versions of Advance QoL into electronic versions using the REDCap

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Multi-methods development and validation of a tool for use in measuring serious illness communication competence: Assessment of clinical encounters – Communication tool (ACE-CT)

Objectives: The assessment of serious illness communication (SIC) competence has, to date, primarily utilized tools that are profession-specific and not explicitly designed using competency-based or person-centered frameworks. To address these gaps, we developed and validated a new tool, the Assessment of Clinical Encounters – Communication Tool (ACE-CT). Methods: We convened a national panel of interprofessional SIC

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Management of Cancer During Pregnancy: ASCO Guideline

Purpose: To provide guidance on the recommended management of cancer in pregnant patients. Methods: A multidisciplinary Expert Panel convened and conducted a systematic review of the literature. Results: The systematic review identified 450 eligible studies. Much of the evidence consisted of observational data, case series, and case reports. Recommendations: Management of cancer during pregnancy should be

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Open Access Palliative care involvement and intensity of end-of-life care among adolescents and young adults with cancer: a population-based study

Background: Adolescents and young adults (AYAs) with cancer often experience high-intensity end-of-life care and low utilization of palliative care. To explore this further, we evaluated the frequency of palliative care involvement and its association with end-of-life care intensity among AYAs with cancer in Ontario, Canada. Methods: We conducted a retrospective cohort study using health administrative databases in

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Transition needs and preferences identified during peer visits to three European best-practice CAYA cancer Long-Term Follow-Up care centres: An EU-CAYAS-NET project

Background: A successful transition from child-centred to adult-oriented healthcare for survivors of childhood and adolescent cancer is essential to help them engage in lifelong surveillance in survivorship care. Information on their needs and preferences for the transition process is needed to identify key components for a successful transition. Objective: To describe the transition needs and

Transition needs and preferences identified during peer visits to three European best-practice CAYA cancer Long-Term Follow-Up care centres: An EU-CAYAS-NET project Read More »

Open Access Palliative care involvement and intensity of end-of-life care among adolescents and young adults with cancer: a population-based study

Background: Adolescents and young adults (AYAs) with cancer often experience high-intensity end-of-life care and low utilization of palliative care. To explore this further, we evaluated the frequency of palliative care involvement and its association with end-of-life care intensity among AYAs with cancer in Ontario, Canada. Methods: We conducted a retrospective cohort study using health administrative databases in

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‘We cannot cheat death’: Young Ontarians with cancer far more likely to receive intense end-of-life care, study finds

Adolescents and young Ontarians with cancer are more likely to receive intense end-of-life care than their older peers, even in situations where it is unlikely to help, a new study suggests — a trend that may be prolonging the suffering of some young patients, according to the paper’s lead author.

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Principles and Recommendations for the Provision of Healthcare in Canada to Adolescent and Young Adult–Aged Cancer Patients and Survivors

Adolescents and young adults (AYA) with cancer and survivors of cancer in childhood, adolescence, and young adulthood are a constituency facing disparities of care affecting quality of life and other outcomes in many parts of the world. In Canada, this situation occurs in a nation with population-based cancer control programs and a government-funded healthcare system.

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Developing an Adolescent and Young Adult Oncology Program in a Medium-Sized Canadian Centre: Lessons Learned

The Adolescent and Young Adult (AYA) Program at CancerCare Manitoba (CCMB) has experienced tremendous growth since its inception. This report provides an overview of how the AYA program at CCMB was established and the crucial factors that led to its early accomplishments and continued expansion. These factors included actions and decisions made at the individual

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Adolescent and young adult (AYA) oncology — An emerging discipline

Recognition of the distinctive challenges in providing care to adolescents and young adults (AYA) with cancer has grown over the past 30 years in numerous countries, stimulated in particular by groups of advocates who have in turn raised awareness and philanthropic funding while harnessing support from the cancer care community and agencies of federal governments.

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Development of System Performance Indicators for Adolescent and Young Adult Cancer Care and Control in Canada

Objectives: To develop an expert-group, consensus-based list of system performance indicators to be used for monitoring, evaluating, and benchmarking progress for cancer care and control in adolescents and young adults (AYAs) in Canada. Methods: A national multidisciplinary panel of AYA oncology experts was convened; they prepared a literature review and undertook a brainstorming exercise to

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