RESOURCE HUB

LLS won’t stop until there is a cure for leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative neoplasms and are able to improve the quality of life of people affected by blood cancers and their families by funding life-enhancing research and providing educational resources, services and support.

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BTF is a dedicated team of volunteers, patients, survivors, family members, health care professionals and staff, determined to make the journey with a brain tumour one full of hope and support. We work collaboratively to serve the needs of those Canadians affected by all types of brain tumours.

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The Canadian Cancer Society works tirelessly to save and improve lives. Thanks to our donors and volunteers, we’re able to fund groundbreaking cancer research into all types of cancer, offer support services to help people better manage life with cancer, shape healthy public policies to prevent cancer and support those living with the disease, and offer trusted cancer information for all Canadians.

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The Cancer and Work website was designed to address the unique needs of cancer survivors with returning, remaining, changing work or looking for work after a diagnosis of cancer. The website provides newly created information, resources, and interactive tools for cancer survivors, healthcare providers, employers, and highlights helpful information from across the globe.

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A Fresh Chapter’s mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances.

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Pink Pearl Canada is a community-oriented charitable organization that provides support, facilitates connections and empowers self-identifying young women who are courageously overcoming the social and emotional challenges of being diagnosed with cancer across Canada.

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A network of patients, survivors, friends, families, community partners and sponsors will work together taking action to promote the very best standards of care.

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Breast cancer awareness for young women

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The Canadian Cancer Society’s community services locator (CSL) is a directory that helps cancer patients, caregivers and healthcare providers find the services they need. They have over 4000 cancer-related services listed.

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This review will provide an overview of the evidence on the delivery of palliative and end-of-life care to adolescents and young adults living with cancer, by identifying knowledge gaps and discussing the key characteristics and types of evidence in this field.

Adolescents and young adults (AYA) with cancer desire peer support and require support programs that address their unique needs. This study investigated the need for, and barriers to, peer support and preferences for digital peer navigation among AYA.

Each year, nearly 9,200 adolescents and young adults (AYAs) aged 15-39 are diagnosed with cancer in Canada. AYAs with cancer have unique medical and psychosocial needs that often go unmet. The AYA Priority Setting Partnership (PSP) is bringing together AYA patients, caregivers, and clinicians to identify the key areas of research that are needed to improve care for AYAs with cancer in Canada. The PSP will result in a list of Top 10 Research Priorities that will guide a new research agenda. We are following the James Lind Alliance Method for this PSP.

Creator: University of Calgary

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Outcome disparities between adults <50 with colorectal cancer (CRC) and older adults may be explained by clinical delays. This study synthesized the literature comparing delays and outcomes between younger and older adults with CRC. Databases were searched until December 2021. We included studies published after 1990 reporting delay in adults <50 that made comparisons to older adults. Comparisons were described narratively and stage between age groups was meta-analyzed. 39 studies were included representing 185,710 younger CRC patients and 1,422,062 older patients. Sixteen delay intervals were compared. Fourteen studies (36%) found significantly longer delays among younger adults, and nine (23%) found shorter delays among younger patients. Twelve studies compared time from symptom onset to diagnosis (N younger = 1538). Five showed significantly longer delays for younger adults. Adults <50 years also had higher odds of advanced stage (16 studies, pooled OR for Stage III/IV 1.76, 95% CI 1.52–2.03). Ten studies compared time from diagnosis to treatment (N younger = 171,726) with 4 showing significantly shorter delays for younger adults. All studies showing longer delays for younger adults examined pre-diagnostic intervals. Three studies compared the impact of delay on younger versus older adult. One showed longer delays were associated with advanced stage and worse survival in younger but not older adults. Longer delays among younger adults with CRC occur in pre-diagnostic intervals.

Many AYAs with cancer continue to receive HI-EOL care; however, in this cohort, there was a clear benefit to Specialized Palliative Care (SPC) involvement in reducing care intensity. AYAs least likely to receive SPC included those with hematologic malignancies, males, and rural AYAs. Increasing SPC access has the potential to improve EOL care.

Symptom burden in adolescents and young adults (AYA) with cancer is poorly characterized but impacts quality of life. AYA with cancer experience substantial symptom burden. Risk of death increased with symptom severity. Interventions targeting cancer fatigue and anxiety, and targeting AYA in lower-income neighborhoods, are likely to improve quality of life in this population.