Looking for articles and other resources on a variety of AYA Cancer topics?
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Care4Kids is a group of researchers from the University of Calgary who study psychological and social outcomes for youth who have been diagnosed with pediatric cancer and their families. They launched a project focused on better understanding how we can improve the follow-up care for survivors of childhood cancer. In order to find eligible participants, they need your help! They are seeking young adult survivors of childhood cancer AND health care providers from Canada that work with survivors of childhood cancer to participate in their online survey.

Young Adult Cancer Canada

Supporting young adults living with, through, and beyond cancer. YACC is here to be the connection to peers, bridge out of isolation, and source of inspiration. Every cancer, every stage, YACC’s got your back.

Colorectal Cancer Resource & Action Network

The Colorectal Cancer Resource & Action Network (CCRAN) is the most trusted colorectal cancer patient and caregiver network in Canada. We champion the health and the well-being of Canadians touched by colorectal cancer and others at risk of developing the disease by providing a “SEA” of services: Support, Education and Advocacy.

Colorectal Cancer Canada

Colorectal Cancer Canada is the nation’s non-profit colorectal cancer patient organization. We are dedicated to colorectal cancer awareness and education, supporting patients and caregivers, and advocating on their behalf. Our goal is to reduce the incidence and mortality of colorectal cancer in Canada and to improve the quality of life for patients, their families and caregivers.

Save Your Skin Foundation

Save Your Skin Foundation (SYSF) is a national patient-led not-for-profit group dedicated to the fight against non-melanoma skin cancers, melanoma and ocular melanoma through nationwide education, advocacy, and awareness initiatives.

Quebec Cancer Coalition

Notre mission est d’être une voix forte pour les personnes touchées par le cancer afin d’améliorer le système de santé en cancer au Québec. Depuis 2001, nos membres partagent notre vision d’un Québec en meilleure santé, centrée sur les patients, survivants et proches aidants.

Cancer Groups

The Leukemia & Lymphoma Society of Canada

LLS won’t stop until there is a cure for leukemia, lymphoma, myeloma, myelodysplastic syndromes and myeloproliferative neoplasms and are able to improve the quality of life of people affected by blood cancers and their families by funding life-enhancing research and providing educational resources, services and support.

Cancer Groups

Brain Tumour Foundation of Canada

BTF is a dedicated team of volunteers, patients, survivors, family members, health care professionals and staff, determined to make the journey with a brain tumour one full of hope and support. We work collaboratively to serve the needs of those Canadians affected by all types of brain tumours.

Cancer Groups

Canadian Cancer Society

The Canadian Cancer Society works tirelessly to save and improve lives. Thanks to our donors and volunteers, we’re able to fund groundbreaking cancer research into all types of cancer, offer support services to help people better manage life with cancer, shape healthy public policies to prevent cancer and support those living with the disease, and offer trusted cancer information for all Canadians.

Cancer Groups

Cancer and Work

The Cancer and Work website was designed to address the unique needs of cancer survivors with returning, remaining, changing work or looking for work after a diagnosis of cancer. The website provides newly created information, resources, and interactive tools for cancer survivors, healthcare providers, employers, and highlights helpful information from across the globe.

Other ToolsWebsite

A Fresh Chapter

A Fresh Chapter’s mission is to help people make sense of the complex emotions of cancer and give them the tools, support, and community to thrive – even in the midst of challenging circumstances.

Cancer Groups

Pink Pearl Canada

Pink Pearl Canada is a community-oriented charitable organization that provides support, facilitates connections and empowers self-identifying young women who are courageously overcoming the social and emotional challenges of being diagnosed with cancer across Canada.

Cancer Groups

Canadian Cancer Survivor Network

A network of patients, survivors, friends, families, community partners and sponsors will work together taking action to promote the very best standards of care.

Cancer Groups

Team Shan

Breast cancer awareness for young women

Other ToolsWebsite

Community Services Locator

The Canadian Cancer Society’s community services locator (CSL) is a directory that helps cancer patients, caregivers and healthcare providers find the services they need. They have over 4000 cancer-related services listed.


The delivery of palliative and end-of-life care to adolescents and young adults living with cancer: a scoping review protocol

This review will provide an overview of the evidence on the delivery of palliative and end-of-life care to adolescents and young adults living with cancer, by identifying knowledge gaps and discussing the key characteristics and types of evidence in this field.


Peer Support Needs and Preferences for Digital Peer Navigation among Adolescent and Young Adults with Cancer: A Canadian Cross-Sectional Survey

Adolescents and young adults (AYA) with cancer desire peer support and require support programs that address their unique needs. This study investigated the need for, and barriers to, peer support and preferences for digital peer navigation among AYA.


AYA Cancer Priority Setting Partnership

Each year, nearly 9,200 adolescents and young adults (AYAs) aged 15-39 are diagnosed with cancer in Canada. AYAs with cancer have unique medical and psychosocial needs that often go unmet. The AYA Priority Setting Partnership (PSP) is bringing together AYA patients, caregivers, and clinicians to identify the key areas of research that are needed to improve care for AYAs with cancer in Canada. The PSP will result in a list of Top 10 Research Priorities that will guide a new research agenda. We are following the James Lind Alliance Method for this PSP.

Creator: University of Calgary


Clinical Delays and Comparative Outcomes in Younger and Older Adults with Colorectal Cancer: A Systematic Review

Outcome disparities between adults <50 with colorectal cancer (CRC) and older adults may be explained by clinical delays. This study synthesized the literature comparing delays and outcomes between younger and older adults with CRC. Databases were searched until December 2021. We included studies published after 1990 reporting delay in adults <50 that made comparisons to older adults. Comparisons were described narratively and stage between age groups was meta-analyzed. 39 studies were included representing 185,710 younger CRC patients and 1,422,062 older patients. Sixteen delay intervals were compared. Fourteen studies (36%) found significantly longer delays among younger adults, and nine (23%) found shorter delays among younger patients. Twelve studies compared time from symptom onset to diagnosis (N younger = 1538). Five showed significantly longer delays for younger adults. Adults <50 years also had higher odds of advanced stage (16 studies, pooled OR for Stage III/IV 1.76, 95% CI 1.52–2.03). Ten studies compared time from diagnosis to treatment (N younger = 171,726) with 4 showing significantly shorter delays for younger adults. All studies showing longer delays for younger adults examined pre-diagnostic intervals. Three studies compared the impact of delay on younger versus older adult. One showed longer delays were associated with advanced stage and worse survival in younger but not older adults. Longer delays among younger adults with CRC occur in pre-diagnostic intervals.


The Effect of Specialized Palliative Care on End-of-Life Care Intensity in AYAs with Cancer

Many AYAs with cancer continue to receive HI-EOL care; however, in this cohort, there was a clear benefit to Specialized Palliative Care (SPC) involvement in reducing care intensity. AYAs least likely to receive SPC included those with hematologic malignancies, males, and rural AYAs. Increasing SPC access has the potential to improve EOL care.


Prevalence, severity, and predictors of symptom burden among adolescents and young adults with cancer

Symptom burden in adolescents and young adults (AYA) with cancer is poorly characterized but impacts quality of life. AYA with cancer experience substantial symptom burden. Risk of death increased with symptom severity. Interventions targeting cancer fatigue and anxiety, and targeting AYA in lower-income neighborhoods, are likely to improve quality of life in this population.


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